Information and Resources
If you’re looking to learn more about blood cancers or Myelofibrosis (MF), here are some trusted places to start. These sites offer clear explanations, practical guidance, personal stories, and the latest research. They’re the resources we’ve found genuinely helpful in our journey, including those involved in initiatives that raise funds for leukemia research.
Take your time exploring—there’s a lot of good information out there.
Leukaemia Foundation (Australia)
The main Australian organisation supporting people with blood cancer. They break things down in simple terms and offer support services, research updates, and help for families navigating a diagnosis.
MPN Alliance Australia
https://www.mpnallianceaustralia.org.au/
A dedicated Australian resource for people living with Myeloproliferative Neoplasms, including MF. They provide community connections, reliable information, support groups, and updates on treatments and research happening here in Australia.
Leukemia & Lymphoma Society (LLS – USA)
A well-known global leader in blood cancer information. Their MF section is particularly helpful for understanding treatment options, symptoms, and hearing from others with similar experiences.
Cancer Council Australia
A great place to get general cancer information that’s clear and easy to follow. They cover everything from understanding a diagnosis to treatment options and wellbeing support.
MPN Research Foundation
https://mpnresearchfoundation.org/
Dedicated to advancing research into MF and related conditions. You’ll find updates on clinical trials, new treatments, and in-depth information about MPNs, which can be crucial for those considering fundraising for leukemia initiatives.
MPN Voice (UK)
A friendly, patient-focused organisation with lots of lived-experience stories, fact sheets, and practical advice for managing MF and other MPNs.
Blood Cancer UK
Another excellent, people-centred resource with clear guides, videos, research updates, and a strong sense of community that often supports activities like climbing for cancer to raise awareness and funds for blood cancer research.
Key Statistics
- This year, 20,044 people will be diagnosed with blood cancer.
- 55 Australians are diagnosed with blood cancer every day.
- There are about 170,000 people in Australia living with blood cancer.
- Around 13% of people with blood cancer wait more than two months from their first appointment to obtain a referral to a specialist.
- 15% of people with blood cancer face more than $10,000 in out-of-pocket expenses.
- Almost 1 in 3 people with blood cancer haven’t been able to return to work since their diagnosis.
- 78% of people don’t know any symptoms associated with blood cancer.
- Since 2000, the Leukaemia Foundation has committed $61.2 million to blood cancer research.
(All statistics provided by the Leukaemia Foundation)
